More about the NeuroWriters group

In 2008 a group of online writers on Psych Centrals Neurotalk Parkinson's Disease board started to discuss ways in which to take their advocacy further, and how to extend the collective knowledge of the writers to a wider audience. This was in part inspired by a desire to move the shared experience, and expertise in their condition, to a place where this knowledge could be brought to the wider groups of people whose lives are touched by PD, and in part a response to the frustrations that many patients have regarding the lack of awareness, even among people who are engaged in medicine, research, fundraising, care industries, and elsewhere, about Parkinson's.

After some discussion with a large group of people from the Neurotalk board, it became clear that a book in a way already existed, within the posts of forum participants, and what was needed was to extract the essence of the information that real people with Parkinson's have been sharing for many years. As the forum had originated with Braintalk Communities, and went back even further, it was also decided to include the history of online PD advocacy, and to tell the story of how it moved from online support in the early days of the internet, to the many and very widespread patient groups that exist internationally, in the virtual world and as very real advocacy groups, and individual activists.

This process of advocacy is still developing, and the patient understanding of their condition is still growing and influencing the way that PD is seen, in truth patients are pursuing a better understanding of Parkinson's, in the hope of an eventual solution for all people with Parkinson's, whoever, and wherever they are.

NeuroWriters was formed and have been working together since mid 2009 to bring The Peripatetic Pursuit of Parkinson's Disease to everyone who needs to know more about the condition.